I don't quite know what to do about him. I am pretty sure it is the Dexamethasone. some people get really grumpy; apparently it makes Noah sad. He has seemed really tired and kinda down since Saturday. I put it down to staying up late and all that puking ( it can really tire a kid out), but I realized today that it is more than that.
He has been kind of worried about today's clinic appointment the last couple of days. He had to go to get the l'asparaginase injections in his legs this afternoon and by this afternoon he was downright scared. He cried and curled up in a little ball, not letting the nurses anywhere near his legs with those needles. I finally intervened, telling him the same thing I have been telling him all along, that the EMLA does work, he is always relieved when he can't feel the poke, etc. I pulled his legs out, sat behind him and tried to calm him down. If he is tense when they poke him, it hurts way more. There is a trick that if he wiggles his toes, his legs are not too tensed up, so I encouraged him to do that. It worked and when he didn't feel the poke he kind of sunk into me and said, " you were right..." Yikes. Hopefully he remembers that on Wednesday!
Unfortunately, his mood didn't really improve after that. He was trying to do a drawing with a volunteer who came to do crafts, but he couldn't. He just looked over at me and tears rolled down his cheeks. For no reason at all. When it was time for supper, he didn't want to eat what was provided, so I made him a tuna melt which he usually loves. He sat down and cried. I mean, sobbed. He dripped tears all over the table and his sandwich and everything! It wasn't even really about the food, and even talking to Tom on the phone didn't help. I went over to him and he stood up and threw his arms around my neck and just cried. I really hope it is a mood swing, and that he doesn't just stay down here at the bottom the whole three weeks... I don't think I could handle it. He finally ate a bowl of cereal and went to bed. At 6:30. He is still sleeping. I have to give him another dose of that lovely Dexamethasone yet tonight. yay...
I guess I'll have to wake him up. Fun....
Oh, please Lord, give Stacy and Noah and Tom strength to get through the next three weeks. Please Lord. Please Lord. JVD
ReplyDeleteI am so sad that Noah has to go throuhg all that. I am crying for you Noah and praying for strenght and encouragement for your whole family. I love you all so much. Grandma V.
ReplyDeleteOh dear, you have me in tears too. We are lifting you up in prayer as often as you come to mind these days, which is A LOT! I pray that even through the tough times you feel our love and that you see glimpses of Noah's true spirit peek through the sadness. We continue to fall before the throne of grace asking for a miracle each time. Praying you feel God's presence through this storm.
ReplyDeleteIf I had to go through the same ordeal I would have been crying a long time ago. We know what a strong character Noah has. We will continue to pray.
ReplyDeleteKris
Cancer sucks.
ReplyDeleteEmotionally, it's better out, than in. If a child needs to cry, a child needs to cry. It's heartbreaking to be sure, but the best we can do is receive it, and support him. Our thoughts and prayers are with you all.
Oh Noah, Stacy, Tom and family-- You are in our prayers. May the Lord lift Noah's sad spirit and give him one for the fight and may you all have a strong sense of his hands holding you through this battle.
ReplyDeleteWe too are praying for you all. I don't know what else to say... everyone else's posts say it all. There is power in prayer!
ReplyDeleteStacy and Noah... We've been keeping up with you on this blog, and think of you so very often. Our daughter is 10, and I just can't imagine her having to be as brave as Noah is having to be. Hold eachother close- let those tears flow, and know how very much you are loved. Praying for strength and peace for you all!!!
ReplyDeleteCarrie and Mike Brander- Calgary
Hey Noah I couldn't handle the needles but you man are awesome.
ReplyDeleteSending hugs and prayers your way.
ReplyDelete