"That was EASILY the best Erwinia I have ever had!"

That is what he said.
Which could be due to the fact that he was kind of high at the time....
You see, a parent had said that I should give him Morphine to help with the pain, and then a different parent told me I should give him Nabilone, to help with the anxiety.  Nabilone is the anti-nausea drug that is a synthetic Marijuana, and Morphine is a pretty powerful pain med.  Apparently when you give them together, it makes your kid fly..... then puke.  The nurse, who was trying to make me feel better, told me that people give these drugs together all the time, and it wasn't that big of a deal. Noah, however,  is quite sensitive to drugs, as we now know, and it hit him within minutes. I dropped him off at the clinic, went to find a parking spot, and when I came back, he was sitting on a chair with his head in his hands, saying, "My head feels funny..." I actually found it fairly humourous, until he started feeling nauseous.  Thankfully, puking makes him feel better, so after that he was fine.  A little chatty, but fine, nonetheless.  ; p  He also had the munchies, which is one side effect I can get behind!  He ate more yesterday than he has in a long time.

I do think I will continue to give him Nabilone daily, even when he isn't feeling ill, and I will give him Morphine on the days he has erwinia, just not at the same time.

We also had a little adventure with his VAD.  He doesn't mind being "accessed", (putting the needle into his port) so they often de-access him if they won't need the IV line for a few days.  He decided because it was less hassle to just leave it, that he would stay accessed until Monday. I will post a picture so you can see that they put the needle in, then they cover the whole area with Tegaderm.

 Noah's skin doesn't like Tegaderm- it gets all red and itchy, so at around 10:30 last night he wanted it off.  I asked him if he wanted me to bring him in to the hospital so they could de-access him, but he said no.  So I offered to do it myself. I mean, I have seen them do it hundreds of times how hard could it be- really? They actually showed me how, once, in case I needed to do it. He wasn't really keen on it, but he decided to let me do it. So he pulled the dressing off and I tried to pull it out.  I knew there was something to do with pushing the two parts together, or pulling them apart, but I couldn't figure it out.   Meanwhile, my son who is a bit of a bone-rack, is sitting shirtless with a needle and line sticking precariously out of his chest  in the kitchen at 10:45 at night, with a couple of mothers giving advice.  I don't know what I was thinking,  really.  Anyway, he finally says to me, "Can you just call the hospital and ask them how?" So I called them and explained how I felt really stupid, but I had halfway de-accessed my son, but I couldn't actually get the needle out, blah blah blah...and they told me I had to hold the bottom part (the two clear "wings " you can see in the picture, if you look closely) down onto his chest, then collapse the black "wings" and pull up until I hear a click and it will pull right out.  Then she said, "Who is it?" I almost told them a different name.  It was close.  But in the end, I thought, oh well, if it gets infected, they will know about it anyway, right?  I was very careful: I washed my hands, I swabbed the area with alcohol before and after, so I am fairly confident it will be ok.
I think.

Maybe you could pray for that too?