Maintenance week 1 - done!

There are 85 days in each round of maintenance. Every day Noah will take a chemo drug called Mercaptopurine, or 6mP. Every month from now until June 2014, he will need to go to Vancouver for Pentamidine, the inhaled antibiotic, and sometimes a Lumbar Puncture.  The first five days of each month he will take Prednisone, and every Friday, methoTREXate.  The chemo will make his counts go down, so they will be adjusting them until they can keep them at a certain level, constant for the next two years. 
We have only been doing this for one week, and we have already forgotten 2 6mPs, a Prednisone and 1 methoTREXate. 
Sigh.  I know that I am not the most organized person in the world, so when we got home from Vancouver, I took out the calendar and detailed each med and when it was to be taken on each day.  It turns out that for a system like that to work, one must actually LOOK at the calendar.... *shakes head*
On a brighter note, Noah has really enjoyed being at home. He has been hanging out with his friends, playing video games, specifically the new Star Wars game for the Kinect.  He has been very active, riding his bike a bit, jumping on the trampoline and just being a normal 11 yr old boy.  He even went to and participated in a Bowhunter's Jamboree yesterday!  His good friend Curtis and his brothers are accomplished hunters and love archery and bowhunting, and Noah has had a lot of fun the last couple of years at their house, learning to shoot with his compound bow.  This weekend they invited him to the Jamboree and he had a blast - he said he thought he hit about half of the targets, which he was proud of.  He was completely exhausted when he came home after an entire day of shooting.  Exhausted but so happy. 
He has also done a lot of homework; he only has two pages left in his math book!  Once he is finished math, we are going to start a science experiment. He isn't going to go to school, I think, until next year.  His counts will likely be up and down until they figure out his dosages and we just think that since there are only two months left, we'll just finish out the year at home, and give him a fresh start in Grade 7.
oh, and as I promised, some photos:

The Lego Store has an entire wall of pieces you can buy in bulk! 

 There is a kiosk where you can make your own minifigures. Noah had a lot of fun designing a few.

I don't know how, but I forgot to tell you that the Batmobile (yes, THE Batmobile) was at the hospital while we were there last week.  This is not the best photo, but I love Noah's hilarious attitude here,and also how much Jasper is loving it too!

 Thank you all again for your love, support and prayers - we are still overwhelmed by it all.....