Yep, we' re still here. Noah's counts are very low; his neutrophils are at 0.1 and they need to be at 0.75 to be able to return to Vancouver for treatment. Normal range is 1.5 - 5.6. This means we need to be careful not to come in contact with anyone who is sick, because he just has nothing to fight off an infection.
Which is why I spent the evening in emerg with Miranda tonight. She came home from school today with a rash on both of her legs and I thought I should find out if it is contagious or not, just in case Noah could get it. Thankfully it seems to be a contact dermatitis, but we had to sit at the hospital until 10:30 to find out. Poor girl, she was so tired... So, if you saw our van at the hospital tonight and are worried it was Noah, he is just fine, thanks!
Miranda is so sweet. I said to her as we were leaving, "Thanks for putting up with me dragging you to the hospital when you feeling fine. Sorry about that." Her response? "It was just 2 1/2 hours, better than Noah getting sick and having to spend WEEKS in the hospital! 2 1/2 hours isn't very much." My goodness, my kids are way too awesome!!!! Thank you Lord for these kids!
Noah has actually had a fun week- before we knew how low his counts were, he actually spent an afternoon at school. He played intramurals, stayed while the class opened up the eggs that didn't hatch in kindergarten this year. (He wore a mask, but it wasn't necessary, really- they weren't diseased. The chicks in the eggs were fully formed, ready to hatch, but because of the humidity in the incubator, the shells became too hard to break through, so the chicks died when they couldn't hatch. Sad, eh?) He had a great time and was really tired afterward, but felt it was totally worth it.
Initially, I was disappointed when we couldn't go back to Vancouver this week, because it means we can't be here for the Relay for Life, and because it pushes back the date he can return to school, etc. But I realized that I have to stop thinking about that, and just enjoy the time at home with my husband and my girls and not worry about that stuff. If he needs to be homeschooled for all of grade 6, it is NOT a big deal. It doesn't matter. He will be fine and we just need to stop worrying about that. It also takes away from my time with the girls, and that is not fair to them. So, I am going to enjoy every minute I have here. Noah is already doing that; what a good example he is to me! Ultimately, it isn't in my hands, anyway. I think I already wrote about that in an earlier blog - the quote from Jesus about how worrying does no good at all, won't add an hour to your life, or an inch to your stature- now I just have to remember it applies to everything, lol!
If you're in Smithers tomorrow, the Noah's Ark of Hope Relay for Life team is having a garage sale at 4501 Alfred Crescent, please support the team in raising money for Cancer research! Thank you, and please keep praying for us, that our time at home is restful and good and that Noah will not get sick while he is here. Many many thanks for all of you and your support....
Hey Noah seemed like you had fun at school.Hope to see you around
ReplyDeletehi noah it is chelsey i wanted to say that my birthday is this month on the 28th so that would be May 28th i am going to ask for money but not for me but for you so you can do whatever you want with it!I was wondering if you are still in the Childrens Hospital that I could come to say Hi and to vist with you because I actually moved to my old home back in Agassiz. well please can you guys answer my question?
ReplyDeleteHi Chelsey! I will be at Children's Hospital eventually and we can let you know what would be a good time to visit if it is ok with your foster parents and you email my mom with your address. Hers is sstolte at bvcs.ca. Do you like it there? Thanks for thinking of me with your birthday present, that is REALLY nice, but you don't have to do that if you don't want to. thanks for writing on here.
ReplyDeleteNoah
P.S. Emily and Alyson say hi to Justin and Kassandra.
HI Noah and Stacey
ReplyDeleteoops - missed your last 2 posts, so i am not sure if i was at 'your' garage sale on Saturday or not - probably!! there were 2 or 3 on Alfred Avenue.
i am going to take my neighbour to the airport tomorrow so will stop by the school to see if you are there and say hi!!
WOw - did you notice how suddenly all the lime-green poplar 'baby leaves' seem to pop out over the weekend?? Everything smells so wonderful outside - is great to take walks and bike rides in the fresh air.
Stacey, i can relate to you comments re living in the future so much that we miss out on the present. Here's to both of us learning to be more in the present!!
See you at the AGM tonight?
lotsa love, prayers and hugs
Pat Klym Becker aka Lady Patricia
ps sometimes it takes 2 or 3 tries before the comment gets posted - persevere and it will happen
Hi Stacey...I don't think we've ever met but we know Tom and his family....we wanted you to know that we've been praying for Noah and your family...check the blog often to see how Noah is doing. We'd like to send him an iTunes card if that's okay with you.....I know our grandsons love getting them.....if there's something you think he'd like better just let me know at ineke@shaw.ca
ReplyDeleteMake sure to say "hello" to Tom for us.
Hugs: The Rekmans in Saskatoon
Good morning guys!! You are on my heart and in my prayers today. I hope that Bloodwork goes well but also that you have been able to really enjoy your time at home! Hopefully we'll see you soon!!
ReplyDeleteAlison was wearing her t-shirt on monday that is so cool i said i want one. i am late at wrighting back because i need to go to bed.I have a questonwhat is your bed time Noah?
ReplyDeleteBy michaela
ps i have to get redy sorry wright back