Still in Vancouver...

Hi everyone, yes, we are still here. We had hoped to go home on Tuesday as has been our pattern, but on Monday Noah started having stomach and chest pain that we finally figured out had partly to do with gastric reflux. He was in quite a bit of pain, and it was worse when he stood up. That was really awesome, because he couldn't be given Tylenol for the pain and he had to stand up to go to the bathroom at least every two hours. I made it worse by making him drink a LOT :-s
They did do a urine culture, because he was having pain in his belly as well. Anyway, he was very unhappy and very weepy, which was very weird. He was even moaning with pain during his sleep! It all made sense when they took his temperature and he was 38.4 degrees. Aha! He had a fever!
I hate having a fever. You know how your back hurts and your skin hurts, etc? No wonder he was so unhappy! So they did a blood culture and gave him some tylenol. (He can't be given Tylenol because it masks a fever. If I were to give him tylenol because he had a headache, for instance, and it was all because he had some infection, no one would know and with his immune system being compromised, he could get really sick. If they know he has a fever, they give him tylenol AND antibiotics.)
Dr. Svetlana decided that since he had a fever and he was in pain it would be best to wait until the cultures came back to make sure he wasn't "growing anything". He was given 3 doses of the antibiotic and it seems that it helped quite a bit; his fever is down since Monday and he no longer has any pain. So we have been cleared to go, right after Noah gets a blood transfusion. His hemoglobin is a bit low and she thought he might need a top-up before we go home, which was very nice, I thought.
Our flight is tonight, and we will hopefully be home for a few days.
We may get to go to CampGoodTimes Family camp this summer. I waited to apply because I didn't know which week to apply for, since we never know when his treatments are going to begin. Turns out I should have just applied and then we could figure it all out afterward. Apparently that is what they do. Oh well. So now we are on a waiting list and if someone cancels, we are in! I have heard it is super awesome, and the food is great and the activites are fun, etc. Our kids are excited to go. The only Problem is that it starts on Monday. So we will get home on Wednesday night and hop in the van on Sunday and come right back. At this point, I am not sure I want to do that. I kinda want to be home for a while - at least a week, lol!
The kids get to go to the Kids Camp regardless, so it won't be the end of the world if we don't end up at Family Camp. We can always go next year.
I must say I am addicted to my laptop. This month without it has been quite difficult. I am very thankful that at least I have an iphone and there is a lot of free wi-fi out there. However, I did finally feel free to be able to read without feeling guilty. I have a terrible reading disease - if get a book in my hands nothing else happens until I am finished reading it. My children will not be fed, the laundry will not be washed, nor will the dishes. They do not exist whilst I am holding a book. But here in the hospital, I am not responsible for anything! Sure, I have to look up once in while when the nurse comes in with some medications to make sure the labels are right, etc, or to say, "Noah, take a bite/drink!" But it is quite glorious, all this time to just read and read and read, while Noah watches Family Channel or Teletoon to his heart's content. We are both happy. Until I finish my book and remember that Noah still has Math to do. Which reminds me....