Tuesday, March 29, 2011

From Alyson's perspective:

I like RMH because it is HUGE! (Alyson typed that sentence by herself) They have lots of movies like Princess Diaries, The Little Mermaid, Ice Age, and we can do lots of crafts here, too. I think Vancouver is cool. It is also HUGE! We have been doing lots of fun things since we got here. We even went to the hospital to see the HUGE playroom and where Noah was while we were at home. We saw the clinic and the pneumatic tube thingy they have there. Dr. Davis was telling Noah that if it was bigger we could send HIM up in it!

Stacey here again:
We have had a busy weekend and week so far! On Friday we went to the clinic and did the blood work and chemo thing. Noah gained 10 lbs in one week!! He is quite anemic and we could tell - his heart rate was way up and he is very pale but he was at 84 and they normally do transfusions around 80, but the Dr. thought he looked ok and he was actually up from the last test, which means he is starting to make his own again, which is positive. His platelets were also up, which is great. Anyway, they decided not to do the transfusion. We were also expecting to meet with the doctor so we could find out what April looks like, but it was not to be.... :(
That is actually what I have really been struggling with, the not knowing... it is a good exercise for me. I was telling someone a while ago, that as a mom, this is the one of the more difficult parts of all of this- not being able to plan anything. I have absolutely no idea what April looks like, and I am so used to having a fairly concrete plan for what activities or sports ( or whatever ) we are going to be involved in and managing all of that, so it is hard for me just to rest and trust that God is doing all of that for me and I just have to have patience and, like I said, rest. It is not easy, as you can probably imagine.
Our Doctor, Dr. Davis, was away, so we met with Dr. Lucy, who does the bone marrow biopsies and Lumbar punctures. We did find out that there is a week break in Noah's treatment and so it looks like - if everything goes well and Noah doesn't get sick- we can go home for a few days!!!!! Yay!!! We will need to go back to the clinic on Friday for his chemo, his final bone marrow and LP of this phase (possibly the last bone marrow he will need - ever) and then we can check out of here and start driving home.
While we are home, they will send the bone marrow away for a test and that will determine what the next months look like. What we have been told by another parent is that the next protocol may entail 4 days on, 4 days off for a while (not sure how many days). We would need to go to clinic four days in a row for chemo and then not for the next 4 days, and so on, and so on....

On Saturday we went to Abbotsford to visit Uncle Ken and Auntie Helene, and some people went swimming while others went shopping for the afternoon. Alyson and Miranda had a hoot with Hannah Jo and Tom and Uncle Ken at the pool. Emily wanted to spend her birthday money so we went shopping, first to Costco, then to Replay, a skate shop in Abbotsford. She has been wanting a longboard since we went camping with the Wimbushes last summer so she splurged and got one - now that we think about it more, we think it is exactly like yours, Josh! It is pretty awesome and she is super excited about it.
On Sunday we went to Lynn Canyon, where there is a suspension bridge and some nice trails by a creek and waterfalls. Noah and I stayed behind and relaxed and took it slow with Auntie Helene and Hannah Jo while everyone else trekked up the stairs and hiked all over the place. (Allie only fell in the water 3 times... pretty good, only her feet and ankles really got wet - I was actually expecting her to get a full soaking, lol) It was very beautiful and relaxing and reminded us of home, to sit by a creek and throw rocks in the water. I AM SO EXCITED TO GO HOME!!!!!! (please Lord, let us go home....)
Also on Sunday Tom's brother Chris arrived with his family from Edmonton to visit with us this week. Our kids have had so much fun together, but it has been different; Noah is noticeably tired and can't do things like run or even hurry across the street - his heart starts to pound out of his chest! What a different boy... can't wait to have my Noah back......


16 comments:

  1. Hi,
    It is really exciting to hear that you may get a chance to go home soon. Sounds like everyone is having a good visit. Funny that you went to Lynn Canyon...my parents live just a couple blocks from there and that is where we have been staying. We really wanted to come and visit, but now I'm sick so I guess it just won't happen. We will keep you in our prayers and thoughts.

    Shawn and Crystal.

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  2. Hi Stoltes,
    I was so happy to read an update from you today. All of you have been in our thoughts and prayers alot. I didn't want to call since I was sure you were busy with visitors. I am glad you are having a wonderful time together and we will pray that you can head home to Smithers for a few days this weekend. Lots of love, Auntie Denise

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  3. Hi to all! Glad to hear C&E made it safely. Sounds like you're having fun, at least most of you. It must be hard on Noah to pass up the fun and be so tired out. A hug for Noah, you're such a trooper. It will be wonderful to go home for a few days. That will be a test. Is Noah up for such a long drive? Hope all will be well. Love, Mom

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  4. I can relate to the unpredictable-ness. We felt that way too when we were in the RMH in Calgary. I am sooooo happy for you that your family can be together. It makes me think of that RMH commercial with the eggs supporting the books- did you ever see that one?
    We will continue to pray for all of you as you walk out each day on your journey of triumph!
    PS How old is Noah?

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  5. I'm so happy you're able to spend time together as a whole family. That's awesome. Praying you can go home too.
    The hardest part of being a mom, we are not in control in everything and can't fix everything. Thank God we have God to take care of all that. (sometimes easier said than done)
    Thinking of you all.
    Jackie R

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  6. @Terri - Noah is ten.

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  7. Hey Stacey, Just wanted to let you know that we've been praying for you all. The other day i was at a concert and thought of you, it was really neat. Matthew West was playing at Dordt and he played this song and I thought I'd share it with you.:
    http://www.youtube.com/watch?v=LqiTx5xaObs

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  8. oh, I meant to reply to your other comments too, Terri! No I haven't seen that commercial, must have been an Alberta ad? And yes, it is very nice to all be together, even though we are now squashed into a single small room...

    @Mom - I think he'll be fine, we have a lot of technology to keep him occupied and take his mind off of the trip,lol. Besides, he is so excited to go home and see Willow he wouldn't care if we had to drive for 3 days!

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  9. Hi Stacey...thanks for the update. So happy to hear that Noah and you may be able to spend some time at home. I can't think of a better place to be when one is in need of a rest. Very cool too that you have had an opportunity to enjoy some of Vancouver with Tom and the rest of the kids.

    The family and especially Noah continue to be in our prayers.

    Nikki

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  10. So glad you are together!! I really do hope you get to come home. I've been praying for you specifically with all the unknowns. "Be still and know that I am God" is not just a quaint little verse, huh? Know that I'm praying for you as you rest in His plans. I heard this song called "Blessings" and totally thought of you - and saw that someone put the lyrics on another blog entry for you. It's a beautiful song - I know you'll love it! Hope you got to get some more singin' in! Glad Noah's gaining weight! We're still praying for less than 5%. Hopefully we'll see you soon!!

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  11. Sounds awesome I hope you don't get sick so you can come home that would be awesome.

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  12. Prayers continue to be prayed for you all. As the waves of challenge hit you, take a deep breath for the next one. You can do it. Coming home would be like treading in shallow water for a little while. I really hope you can come home. Janna & Ron

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  13. @Shawn, I am so sorry you're not feeling well; it would have been nice to see you this week, but hopefully we'll see you next week!

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  14. Hey Noah, Hope you are not going to get sick cause i want to see you at school.

    We are still praying for you

    James

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  15. Greetings to the Stoltes!!
    So wonderful that you can all be together.
    Thanks, Alyson, for your perspective comments!!
    Great to hear that Emily found something she really likes. Being in a pool is a good place to play with friends and relatives, right Miranda.
    Noah, know that you are bathed in prayer in our church too. I am praying that it will be in God's plans for you to come home for a visit - sooner rather than later. However, as your mom knows, that may not be Plan A. Tom and Stacey, Resting in the knowledge of God's love is usually more challenging than responding to His will in action!! Praying that you 'feel his wings supporting you daily - yea, even minute by minute.
    have fun growing together in your little room :)
    Lotsa love and prayers
    Patricia Klym Becker

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  16. * Kiss kiss kiss * Noah you are incredible!! I hope that you continue to stay healthy so you can go to your own home, even if only for a couple of days!! I'm sure Willow is missing you like crazy. Stay tough - you sure our a fighter!!

    We pray for you all continuously!
    xxx-the germ free kind, of course! The Cupido Fam

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