Sunday, March 20, 2011

Layin' Low

This weekend we didn't do a whole lot; it was really nice to relax and lay low. Yesterday Noah and I went to Oakridge Mall for a while and then came back to RMH to watch a movie. We were snuggled up on the bed when our room phone rang to annouce surprise visitors. It was John and Aleeda Vis, bearing homework!!! Yay! Noah is enjoying the SpongeBob typing tutor; he was quite excited about that. There are 3 novel studies, a grammar book, a writing book, some math games - lots to keep his brain busy! Thanks!
Today I really wanted to go to church so we decided to check out Vancouver 1st CRC, where my 2nd cousin Trevor and his wife Julia are the pastors. I am so glad we did! It is going to be a nice "home" for us while we are here. It is such a small world, though, one of Noah's doctors was there as well as a nurse from the ward! It was great to see them and discuss with them what is appropriate for us to be doing, eg, it is ok for us to go to church, but don't sit close to anyone and definitely no hand-shaking! Coffee afterward is also out, but that is fine; it was just nice to be there and to SING. It is crazy how after only 2 1/2 weeks that I would miss singing that much.... I just gotta get some good songs on my iphone and wail away!
Another person we met at church was Tom's dad's cousin, Alyce Stolte-Vaughan. She knew from her other Stolte relatives that we were here, but didn't know how to contact us. Then we showed up at church! It was funny, and she is excited to meet Tom sometime. Crazy.

This afternoon Uncle Ken and Auntie Helene and Hannah Jo came and we went for a walk on Kits Beach, where we turned over rocks and looked for little crabs, and picked up shells etc. It was nice but very windy. After that we drove around a bit, looking for a place to eat supper. We decided on White Spot and had a wonderful supper out!

Noah has just come back from his bedtime snack, yogurt and granola. He is so funny, he just goes down to the kitchen and walks around tapping his fingers on the counter, trying to decide what to eat. Hmmmm.... He is getting a bit of flak from the Night Manager for eating such healthy food all the time, lol. His cheeks (and his tummy) are starting to get a bit puffy, which is a side effect of the Prednisone, so he looks like he is gaining weight, but I am not sure that is true. On Friday he weighed 31.5 kg, which is 100g less than what he weighed when we arrived on March 4, but 100 g more than his weight on Wednesday, so that is positive. Apparently it is good to encourage him to eat as much as possible now because the next round of treatment will make him feel bad and he won't want to eat anything. He was already so thin - I hope he gains a lot the next couple of weeks, just not all in his belly and cheeks, ; )
Today we have also been playing some new games suggested by Jeff Anderson (and Mel) from the Appstore on my phone and Noah's ipod. Cat Physics and Urban Ninja are his new faves. (free for a limited time....) Very cool and challenging; a good time waster for tomorrow.
Tomorrow is another clinic day, hopefully just blood work, but they did warn us there may be platelets as well. With platelets there will always be Benedryl, because he had that allergic reaction the first time, so if he gets them, he will be tired when Tom and the girls arrive. The good thing about a platelet transfusion is that it only takes an hour, not three, like blood!
Tom and Emily, Miranda and Alyson left Smithers today at around noon and thought they would get as far as Williams Lake tonight, and drive the rest of the way tomorrow. We can't wait!


16 comments:

  1. Hope you all have a fantastic time as a family over the break! So nice to be able to be together!

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  2. We can hardly wait with you! What a wonderful blessing to have everyone together! We're praying for that 5% and that clinic days won't always be soooooo long. Enjoy the family time:)

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  3. RMH - your home away from home looks amazing. Stacey you are doing a wonderful job on Noah's Blog and enabling all your family and friends to be apart of Noah's Journey of Triumph. There is never a day that Noah is not is our thoughts and prayers. We are all coming down on Saturday or Sunday, hopefully we can connect again. Noah.....keep blasting those blasted blasts and Stacey.......keep singing!!!!!
    Hugs to all,
    Debbie

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  4. Hey - that's my parents' church and the one I was born and married in! I'll tell them about you - I think they were a bit preoccupied yesterday.
    Glad you both are having fun despite the circumstances - and I'm glad as a teacher to hear Noah is yearning to be learning :) Love and prayers to you !!!

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  5. I am so glad to hear that the whole family will be together! What a moment that will be! I hope Noah's fully aware when the time comes.
    It's great to hear that Noah is eating (lots) and that he wants to do school work! How fantastic is that! It's great to read your posts and see how positive you always are, Stacy! What a mom you are for Noah right now!

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  6. Hey guys! So great to see pictures of where you are! Neat place!! Still praying for the low numbers - 5 or less!! I hope you have an amazing time together. Hopefully the weather is great and you get to do more beach days! Glad you got a good SING in at church! Enjoy!

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  7. This is the RMH where I visited a friend when she was having cancer treatment. It was such a blessing to them and I'm so glad that it is for you as well! I hope you have some great days with the family all together. We pray that it will be a bonding time for each of you to carry with you when you can't be together during treatments. A friend whose son is in critical condition in another hospital quoted the song from this verse on their caringbridge website, Isaiah 40:31, "But those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." May you find your strength in the Lord!
    Monica

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  8. The Ronald McDonald House looks amazing!! Caleb thinks the playroom looks like it could be in a Dr. Seuss story :-) I hope you have a fantastic reunion with Tom and the girls and that Noah feels good enough to really enjoy your time together. We hold tightly to the hope that God is going to display his glory and power in Noah's test results!!

    This song came on the radio yesterday and it's a good'er ..

    Laura Story - Blessings
    We pray for blessings
    We pray for peace
    Comfort for family, protection while we sleep
    We pray for healing, for prosperity
    We pray for Your mighty hand to ease our suffering
    All the while, You hear each spoken need
    Yet love us way too much to give us lesser things

    ‘Cause what if your blessings come through raindrops
    What if Your healing comes through tears
    What if a thousand sleepless nights
    Are what it takes to know You’re near
    What if trials of this life are Your mercies in disguise

    We pray for wisdom
    Your voice to hear
    And we cry in anger when we cannot feel You near
    We doubt Your goodness, we doubt Your love
    As if every promise from Your Word is not enough
    All the while, You hear each desperate plea
    But long that we’d have the faith to believe

    ‘Cause what if your blessings come through raindrops
    What if Your healing comes through tears
    What if a thousand sleepless nights
    Are what it takes to know You’re near
    And what if trials of this life are Your mercies in disguise

    When friends betray us
    When darkness seems to win
    We know the pain reminds this heart
    That this is not, this is not our home, is not our home

    ‘Cause what if your blessings come through raindrops
    What if Your healing comes through tears
    And what if a thousand sleepless nights
    Are what it takes to know You’re near
    What if my greatest disappointments
    Or the aching of this life
    Is the revealing of a greater thirst this world can’t satisfy
    And what if trials of this life
    The rain, the storms, the hardest nights
    Are your mercies in disguise

    Julie

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  9. Here is the link to the youtube video of the song Julie wrote out above.

    http://www.youtube.com/watch?v=1CSVqHcdhXQ

    Much love,
    Denise

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  10. Happy Tuesday!!
    Just stopping in *again* to falsely inflate the number of hits on your blog :-) Hopefully you are having a fantastic time with Tom and the girls!

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  11. Hey Noah I cant wait to see you back in school! I like your favorite room the kitchen :)

    From your friend,
    James

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  12. HI Noah and Stacey...and Tom and the girls if they are there now!! What a great time it will be for you all to be together.
    I am praying for your blasted count to go down to -5 too!!
    God bless and keep you.
    In His love,
    Pat Klym Becker

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  13. I found it yah! So much information and great pictures. Wondering if Tom and the girls got there. Hope today wasn't too stressful Noah with the transfusions and stuff and I hope you have enough energy to enjoy the visit of your sisters and Dad. If not today probably tomorrow. Where's everyone staying. Guess you eat like mad now so the tough Dad will have to go. Love you all lots and think of you all the time. Love Grandma

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  14. Hi guys, I just wanted to confess that I am responsible for about 25 hits on this blog today. ( maybe even more *blush* ) I keep checking in for any news and to see that blast'ed count. :) I hope you are enjoying your time together.
    Lots of love,
    Denise

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  15. I can't count how many times I've thought of you all - thank you so much for starting this blog.
    Just want to let you know that you are on the Neerlandia Public Christian School's prayer list.
    Hugs!
    Juanita B.

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  16. Noah you can have as many books you want from the library. Will make sure the books get down there.

    Hope you are having a great time with your family this week.

    Our prayers are with you and your family daily.

    Mrs Franken (and Mr.)

    You might enjoy the following song expressing the greatness of our God.

    http://www.youtube.com/watch?v=xv19yFIVzS8

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