When one checks out of Ronald Mc Donald House, the room must be cleaned from top to bottom, all the sheets and duvet covers must be washed and put back on the beds and the room must be completely ready for the next people to stay there. It is a lot of work and generally takes about 3 hrs. I plan to be completely packed tonight because I need to give some of our stuff to another person from Smithers who is driving home. She offered to take whatever wouldn't fit. We should be ok, though, since my parents drove home and took a whack of stuff, Tom had room, so he took some, too and now Michelle can bring MORE stuff for us... there'll be no need to pay a $75 overweight fee this time! It is really crazy how much stuff we accumulated over a month. Again. I have some food I will donate to the house too. I bought groceries, thinking we would eat more than we did. There were too many family dinners; we didn't get to all of our food, which is not a bad thing - the dinners were wayyy better than anything I would have made!
I received a phone call this evening from a lady I know who had Cancer a few years ago; she was calling to let me know from her experience that there is absolutely nothing I can do to make Noah want to eat. He just doesn't want to, and he really can't. He just can't. I know this, but I guess I am just worried about him, and kids with feeding tubes just look so pathetic!!!
This is just a random picture I found when I searched Google images. Cute, but pathetic, no?
I don't want him to end up with one but I suppose it wouldn't be the end of the world...
Although, they are easy to throw up and the way this kid keeps vomiting, it wouldn't stay down long. He felt very ill and threw up twice this morning and the whole time, I was praying, " No Lord, I want to go home, not back in the hospital... please help him to stop..." And stop he did, thankfully. I don't know about this chemo not causing nausea.... I think in Noah, it does. Really, why not? He doesn't react normally to almost all of the stuff he takes, so why not this, too, lol? Seriously, I asked the Dr. if I should have to give him Ondansetron for nausea with the Erwinia injections and she said "no, it shouldn't cause nausea - although for Noah... hmmm..." She actually said that! We have to go to clinic tomorrow for the last set of injections this round and for vinCristine and possibly a blood transfusion so I will ask her about all of this.....
I was going to try to post some photos of the relay for life in Smithers on the weekend, but I am having trouble getting the pictures from facebook to here, and I don't have time to fiddle too much right now. I will try tomorrow when I am sitting around at the clinic or in the airport...
ttfn, and please leave a comment - we love reading them!!
so happy for you that you are coming home!! We will pray for a good day tomorrow and for Noah to feel good!! Mary-Ann
ReplyDeleteSo happy that you are coming home to tomorrow!!!!!!!I wish you good luck on cleaning your room. That is a lot of cleaning. I wish to see you one day. hope you have a safe trip I wish that you could come yesterday .We are all praying for you in my house. I wish that you could come to school with us again.you look good i cant wait to see u .I have a ? Are you staing for monday because i want to see you. we made in are animals out of paper and are stuffing them rigt to day.Michaela
ReplyDeleteWait til your home for the R 4 L photos and then you can get the originals from me. Looking forward to seeing you. Wishing you a safe and timely journey.
ReplyDeleteI agree with your caller. You can't create an apetite and in our experience kids with cancer are "prostar vomiters".It bothers you much more than them. Our Robyn could vomit and not miss a minute of her favorite TV show. So glad you are going home for a bit!! Enjoy!!
ReplyDeleteKaren Wagenaar
Hey Noah good to hear you get to come home. Hope I can see you some time while your up.
ReplyDeleteWe are sooo happy for both of you that you can go home :o)
ReplyDeleteEd and Gerda
hi noah i hope we can see you soon at school
ReplyDeleteSo glad to hear that you guys are home! I love reading your posts, Stacey, not only for the updates about what you are doing and how Noah is feeling but also for the opportunity to see God carrying you and your whole family through this journey. I love that so many people are lifting you up in prayer and that we get to see God in action.
ReplyDeleteLeave the feeding tubes and other possibilities at God's feet. Caleb was singing "He's got the whole world" today and he sang "He's got Noah's Cancer, in his hands" ...sometimes kids know best :-) Love you guys!
We can't wait to see you guys!!! I'm so glad that you are going home. I'll try to call tomorrow and check in. I love the posts!!! K&G
ReplyDeleteHey Stacey. Denise posted the link for your blog and I have been reading it and praying for Noah, you, and your family. It's awesome to see how God has been answering prayers for you throughout this journey. This is a quote from one of my fav. songs by Sidewalk Prophets: "Be strong in the Lord and never give up hope, you're gonna do great things, I already know. God's got his hand on you, so don't live life in fear"
ReplyDeleteShawna Horn (Notenbomer from way back :D)
hey Noah! i have been praying for you all the time. my friend jasmine says "hi and hope you get beter soon!!" i'm going to be in hockey so happy! go Vancouver go! the thing about hockey is if i want new equipment i have to help by it with my mowing money:( i have to mow a lone for the hole summer and i get 200 bucks at lest i'll get so left over money.hope you get to see some of your friends!! Wendy Huttema.
ReplyDeletewhats up. to bad Vancouver did not win last night:( i get 10 bucks for mowing a little strip of grass its so cool:) glad to be home again i bet eh;0 going to vist my cuz next door? you should because he really misses you. cool i looked opn face book this morning and i saw that Tessa cut her hair for you and her sisters did to thats so neat. Wendy Huttema:):):):):)
ReplyDeletetext me back please;)
ReplyDeletetext me back please if you red this wendy
ReplyDelete