No Change...yet

Today has been largely the same as yesterday. Noah still has a very large belly, he is still gaining "weight" and girth, but the rate of gain has slowed from the last few days.  Probably this is due to the fact that his fluids have been restricted, even the infusions of drugs are now in the minimum amount of fluids possible.  He is anemic, but they are even holding off on giving him blood because they don't want to give him any more fluids.  He is only allowed to drink the amount he pees.  Otherwise his fluid balance would be out of whack. Right now he is on the negative side, which is good.  I suppose it helps that he basically slept all day - he can't drink if he is asleep! Thankfully, he is peeing out more than he has taken in.  That said, he is still not peeing as much as they want him to. The diuretics are making him thirsty, which isn't really that good, because that means his kidneys are looking elsewhere for fluids, not the fluids he already has inside his body. I hope that all made sense. I am feeling a bit foggy at the moment.
I think it is time for bed, although there isn't much chance I'll be able to sleep; he is getting a platelet transfusion right now to keep his platelets up high enough for the defibratide.  When they are done, the IV will beep, then the nurse will come in and start a flush, then that will beep, then she will start the Lasiks, then that will beep, then about an hour after that is done, we have to wake him up to pee.  Then every two hours after that she will come in to check his vitals.  Sometimes the IV beeps for other reasons, like air in the line, or an infusion is empty, etc.  And then at 4am she does blood work as well.  It is seriously hard to sleep in this place. 
The Doctors ( I saw 11 different doctors from Oncology, Nephrology, ICU and Gastroenterology today) all basically told me the same thing about the fluids, except the Gastroenterologist, who told me Noah should not be drinking water, that is just a waste, since he hasn't been eating, he should be drinking Boost or Ensure instead. DUH! Don't know why I didn't think of that...
He also now has a peripheral IV in his arm, in addition to his VAD, so he can be hooked up to two IV pumps with a LOT of lines. It is pretty crazy. At all times, he is hooked up to a SAT monitor, which monitors how much oxygen is in his blood, oxygen (right now he is only on 0.5 liters, which isn't very much, but it is not good that he is on it at all), and two IV lines, and then every two hours they come in and check his temperature and blood pressure. tomorrow I will take a photo of  IVan the second and put it up here.  It is intimidating. 
We had a nice visit from my cousin Debbie's son, Dayton.  He is going to BCIT and came to bring Noah a gift from my Uncle Tony and Auntie Ann.  It was a box full of Oilers stuff plus some Manitoba Moose foam antlers.  They are so sweet... Noah thought they were pretty cool, though he couldn't quite figure out how to put them on, lol.  It was cute.  Thank you very much uncle Tony and Auntie Ann, it brightened up his day - he even smiled.  Thanks also to Dayton for dropping by; it was nice to see you. 
well, I really need to get to bed.  Please continue to pray that Noah will start peeing. And peeing A LOT! I know, I feel for the guy - he really has no privacy...