Saturday, October 1, 2011

Phew! We checked out of RMH this afternoon, ate dinner and rushed to the football game. Noah didn't really want to go. He has been having quite a lot of pain the last couple of days. His hips were sore so it was hard for him to walk, then last night, he couldn't get to sleep because his knees were too sore. He was actually crying because they hurt so much. He doesn't cry very much any more, so I knew it was bad. I called the oncologist on call at Children's and she told me I could give him Morphine, so I did, and after about half an hour he fell asleep, only to wake up four hours later, needing more. When I talked to the docs about it today, they said it was the Dexamethasone, and that we can expect this and worse for the next few days. He is walking "like an old man", at least, according to one of the doctors. Yikes! He had a nap this afternoon, but he was still so tired, he kept saying "it's ok if we don't make it to the game." i felt bad because I actuallly drove a house van full of people, and Noah really wanted to leave after the first half (even though we had the best seats- 35 yard line, 3 rows up from the Lions sideline- they were great!) but we really couldn't. I had been chosen to drive because I knew where to go, no one else did! He brightened up part way through, about the time the Eskimos challenged the ruling on the field on Simon's catch, if you were watching, lol. He was ok til the end, but then we still had to get back to the house, get all of our bags and get to the hotel. We are staying at the Travelodge by the airport because our flight HOME (yes we are going home tomorrow- I am so excited!!!) is at 7:45 am and we couldn't possibly check out of RMH in time. We gave a wake up call in 4.5 hours, so I should really get some sleep ... So, to all of Noah's friends who have been saying, "Noah is so lucky! I wish i had leukemia!" i know some of you have been saying that this week... ; ) you should know that even though it seems like all Noah is doing is having fun and getting to do cool stuff while you guys have to go to school, he hasnt seen his dad or sisters for almost a whole month, he has to endure a lot of pain, a lot of needles (18 this month alone), medicine that makes him sad, people poking and prodding him all the time and CONTINUALLY bugging him to eat, etc. Leukemia really sucks. He would way rather be in school with you guys. He misses you a lot. He mostly only gets to hang out with his mom. How awful is that!?! Poor guy.... it has been a huge blessing that there have been so many fun things to distract him from all that other stuff! Isnt God good? He takes such good care of us. This is another post from my phone, hopefully it isn't as fraught with errors as the last one. I can't really go back and read it over. Tomorrow I will try and add a couple of pics from tonight. Good night all! By the time most if you are reading this, we will be at home, snuggled on the couch with the rest of our family. Sigh, I can't wait....

7 comments:

  1. YEA! have a great time at home! I know you both would rather be there than being in Vancouver, even with all the little perks.....it really is great you can have those positive distractions while you have to be away from home though. You all are in our prayers!

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  2. I hope you can enjoy and take comfort in your time at home. We're all still thinking of you all.
    Kris.

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  3. Glad to hear you are able to go home! Have a great and relaxing time. Continued prayers for you all!
    Amanda (Stolte) Agema

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  4. Poor Noah!! WE hope he's feeling a little better today. Give him big hugs for us!!!

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  6. "Hope (Faith and Love)
    is the thing with feathers
    that perches in the soul
    and it sings the tune
    without the words and
    never stops…at all."
    ~Emily Dickinson

    Sending you all our love,
    Dena, Linda, and Dave

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  7. Hey Stacy, so glad the you were able to go home. We have been praying for your family since leaving RMH. Declaring the blood of Jesus over Noah. Just remember no weapon that is formed against you or got family shall prosper!!! From nori and family

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