Tuesday, November 1, 2011

"The corner" has been turned....!

YAY!! The Oncologist was just here and she said Noah has definitely "turned the corner", he is in recovery mode now. I am so happy, I can't even tell you! And -  Noah is peeing!!!!  He peed 550 mL last night at 1:30, then 200 more at 5, then again at 8!  He is being allowed to drink 500 mL this morning, so he is very happy.  Thank you Lord!  His weight is now down to 35.9 kg, and his girth is down a bit too, to 75.5 cm.  I am impatient for those numbers to start going faster, but the doctor said yesterday that it will take a good two weeks for his belly to go down.  This is worrying, because he is still on so much oxygen, and actually right now he is hovering around the 90-92% mark, meaning they may decide to put him up to 5L at some point today.  They are measuring around his belly button and that part is going down, but it seems like the fluid is sitting higher up, around his ribs.  You would think that gravity would push it down, like it was before, when he had a big pot belly. His biggest problem is now all the fluid in his lungs.  
He is actually doing so well, Tom and I felt comfortable enough to go out for lunch and leave him alone. (well, in the care of his nurse...)

He has some exercising to do, too. He has lost a lot of his muscle while lying in bed here, so the physio was here and brought an exercise program for him to do with a resistance band. 

Halloween here was ok.  In the afternoon all the kids who were in the hospital who could get out of bed (and who wanted to participate) dressed up and paraded around all of the wards. It was pretty cool.  Noah wanted to see so we got him out of bed and put his costume on and pushed him in a wheelchair out in the hall to watch.  There were some really good Storm Troopers and an Awesome Darth Vader, so we got a picture with them.  They were also handing out candy and some other things for kids who aren't eating, so he got a cool waterbottle and some books as well as the candy. 







That completely wiped him out, so we got him back in bed and he fell asleep almost right away! 

He was sad, though, because Tom decided to go home last night.  Noah and I were both hoping he would decide to stay- even for one or two more days- but he felt that since Noah was doing so much better, he could safely go home.  That is true, but we have no idea when we will be able to go home and we both really missed him....and are already missing him.... sigh. 

We had quite a few visitors yesterday; we had a great visit with my cousin Meagan and her boyfriend Darren last night, Thanks for coming, guys, it was awesome to see you!
We also saw our friend Melanie and her baby who were medi-vaced down here yesterday.  Her baby, Kalum had surgery and is doing really well, thankfully.  We will all be here for the same amount of time- about 7- 10 days, so we will see a lot of each other, I'm sure.  They are in the next ward over. 

The scariest visitor we had though, was Noah's friend Aidan, they are the same age, they were diagnosed within days of each other and until this month have had exactly the same protocol at the same time, so we see quite a bit of each other.  He and his mom, Tina have been coming in to visit Noah, and Aidan had a fabulous costume he wanted to show Noah, so they came last night. 






Aidan dressed up as Darth Maul, from Star Wars. He lost his hair, too, so it was easier to paint his head and glue on the horns.  Pretty cool, eh?  Noah found his mask at a Halloween store in Richmond, he also had a plaid shirt and suspenders.  He wasn't quite sure what to call himself, someone at RMH said he looked like a New York City Cabbie.  I think the mask looks like Mario (without the cigar) Anyway, he looked pretty awesome too.


Well, this morning Noah is allowed to drink 500mL and I want him to try and drink an entire Boost, so I better get on that....  Have a great day, hope your kids are not suffering from a sugar crash, and THANK YOU for your prayers and your support.  We love reading all of your comments! 


15 comments:

  1. Praising God with you for the good news (with thankful tears in my eyes). I'm so thankful that there are bright moments and supportive family and friends with you every step of the way on "Noah's Journey of Triumph".

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  2. So happy to hear that the ship has been turned around!!!!!
    Hugs to all, Debbie

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  3. The awesome power of prayer! Say Hi to Mel and Kalum too....so good to read your update. Made my day!

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  4. Makayla and I love reading your blogs it has become a regular part of our day. We hope Noah feels better soon and we prayer for him every day.
    Kim

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  5. YAY!!! Praising God with you!

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  6. This totally made my day!! Caleb loves Noah's mask - he keeps asking to see it again and again!! Aidan was an incredible darth maul too. God is so good, what a blessing to have tangible answers to prayer! Praying for baby steps to turn into leaps and for clear lungs! Love you guys!!!

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  7. So happy to hear that Noah has turned the corner! Will continue to pray!

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  8. Praise God from whom all blessings flow.... all the saints are rejoicing with you as Noah continues to heal - sorry that Tom could not stay longer for you - thank God for modern technology enabling you to keep in touch with him and the girls - and us!! Will be great to visit and encourage Melanie too - hi from us. we are praying for all of you. God bless and keep you.
    lotsa love and hugs
    PKB aka LP

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  9. Yay! Way to pee Noah! Do you hear the chant?

    Go Noah! Pee Noah! Go Noah!

    :)

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  10. What a relief (ha ha....). We're so happy, and we praise God and thank him for his faithfulness!
    Chris, Elizabeth, AJ, Ellen and Nate.

    P.S. We love the Mario face brilliant costume! We agree kind of looks like Mario.

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  11. What a great way to start a new month, with positive news and answered prayers! May God continue with you on this journey he has given you and praying always for healing and peace for Noah. From Kathy T.

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  12. Thank the Lord for positive news!!! We've been keeping you all in our prayers! This has been/is a hard journey for you all. Praying for continued strength and healing!
    Love, Ron and Linda

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  13. Hey Noah good to hear you are doing better and nice costume.

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  14. Awesome news, Stacey!! Continued prayers for all of you -

    Sara Douma

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  15. I have been thinking and praying for you, Noah and the family. We just returned home and I did not have computer access since visiting you and I was very anxious to read/hear an update. I am thankful to hear that you have turned the corner.
    We will continue to keep you in our prayers. Alice

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