Wowee Wow Wow!

They said Noah would get better.  And they were right!  Wahoo! Thank you Lord!
After the worst sleep ever, we have had a really good day.  Noah has been quite ill with the c. Difficile the last couple of days, but last night was so bad the only hour we didn't see was 6.  So. Brutal.  I actually can't believe we are still awake. It is amazing what an exciting hockey game can do to wake you up, lol!
Today Noah was feeling pretty good, his oxygen saturation was so high, the nurse kept turning it down until finally at around 2 this afternoon she turned it right off!  He is still off - crazy how quickly that happened!  Two days ago, they were quite concerned, and now he is free, and breathing easy. (well, easi-ER, anyway!) His sats are still kinda low, 92-93, and he may need a bit of O2 tonight while he sleeps, but this is a HUGE step forward. 
He is actually not hooked up to anything right now.  No IVan, no oxygen, nothing.  They have transitioned him to all oral meds.  They had stopped the defibrotide yesterday, thinking he was good, but then he had an ultrasound yesterday to check out what the fluid in his lungs looked like and while he was there, they checked out his liver too, and they found that there were a couple of places that were still full of clots.  They started the defibrotide again last night, but then they stopped it again this afternoon.  I guess they decided that that little bit extra did the job.  (or maybe it is just too expensive...? I've heard speculation that it costs as much as $12000 /dose.  It definitely costs thousands of dollars per dose.  Crazy, eh?  He has had it every six hours since last week Wednesday; I am astounded by the amount of money being spent on Noah... We are so thankful for this drug. It saved our son's life.  And we are thankful to be living in Canada!)
Today he did some walking around, he had a bath, he played some video games, and he ate an apple. He hasn't really eaten anything; his nutrition has mostly come from Boost- I keep encouraging him to actually eat some food, then he can drink whatever he likes- but he just doesn't want to eat anything.  This four hour period, from 8-12 pm, he is allowed 200ml, so I insist that half of what he drinks is Boost, so he can start to get his strength back.
So, the tentative plan is this: once he has spent two nights without oxygen, he will be discharged to RMH, and he will have to go to the clinic for check ups for the rest of the week and then POSSIBLY we can go home on Friday. I can't believe how quickly he has turned around....
Let everything that has breath Praise the Lord!